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Highlights of the 2008 National Patient Conference Nov 2008 - We need your help - participate in our latest survey!
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HAE Message Forum
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2007 National Conference Update
Highlights from our 2007 HAEA National Patient Conference in St. Louis, MO.
HAE Guide/ FAQ
Everything you need to know about HAE and its treatments.
Angioedema Table
Unsure of which type of angioedema you have? Our table spells out the differences and treatment options for the different types of angioedema.
HAE Clinical Trials
Learn more about the new drugs and treatments under investigation for HAE.
Sign up for Clinical Trials
Be a part of our clinical trial database so that you will receive the latest news about the new, exciting treatment options.
C1-Inh Importation
For patients who cannot get into a clinical trial, the HAE Association has set up a process that provides technical assistance to US HAE patients who have no other alternative and therefore must import C1INH concentrate.
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Patient Support Group
Reach out to other HAE patients by subscribing to our HAE mailing list.
HAE in the News
Browse a collection of press releases on HAE.
Misc. Resources
www.HAEi.orgInternational Patient Organization for C1 Inhibitor Deficiencies.
C1-inhibitor concentrate home therapy for hereditary angioedema: a viable, effective treatment option
Economic and political factors have led to the increased use of home therapy programmes for patients who have traditionally been treated in hospital. Many patients with hereditary angioedema (HAE) experience intermittent severe attacks that affect their quality of life and may be life-threatening. These attacks are treated with C1-inhibitor concentrate which, for most patients, is infused at the local hospital. Home therapy programmes for HAE are currently being established. This paper reviews the extent of use of these programmes and summarizes the advantages and potential disadvantages of the concept so far.
