US HAEA Toll-Free Number (866) 798-5598
For urgent assistance, please call (800) 549-3547
Contact Patient Services >

Help us find a cure!
Learn how >

 

  • Join us in Orlando!

    Meet world-class HAE researchers!

    Connect with other HAE patients and caregivers

    Learn how you can help us find a cure – Learn more >

  • Not just treatment…
    A CURE.

    You (yes, you!) can help us find a cure for HAE.

    Learn how >

  • Opening soon…
    The Angioedema Center at UCSD

    Staffed by the world’s most foremost HAE physician/researchers, The Center can be an amazing resource for you!

    Click here for details >

  • Patient Empowerment
    Video Program

    HAE Essentials contains a wealth of HAE information to empower patients to live a normal, healthy and productive life.

    View the video series >

  • 1053 enrolled & counting…

    Our Scientific Registry allows researchers to better study HAE, working towards finding cures and improving patient care.

    Enroll in the Scientific Registry

    Go>

What is HAE?

Learn about this rare and potentially life-threatening disease >

Who is US HAEA?

Learn about our organization, founded and staffed by HAE patients for HAE patients >

HAE News

May 16, 2013
Governor of Puerto Rico signs bill to make May 16th official HAE Awareness Day
Read more>

Read more News & Events>

2012 Year-in-Review

Browse through our accomplishments in 2012.

US HAEA Patient Services

Learn how we can help! Find a Patient Services team member in your region.

Latest Patient Story

My name is Hope and I am 55 years old. I live in a small town in Utah. I was diagnosed with HAE in 2010. My HAE story begins with my first pregnancy at the age of 34. Before that time I had no noticeable symptoms, except a severe allergy to bee stings. Just a [...]

Read Hope's story >

Latest Video

HAEA President, Anthony Castaldo, testifies before Senate, urging continued federal funding for HAE research
View video >

Living with a rare disease
doesn't need to feel lonely.

Join our supportive community of HAE patients and families across the nation.
(It's free and confidential)

What's New at HAEA?

Upcoming Events

Sep 27-29   National Patient Summit >
        Click here to register

Advocacy & Empowerment

Advocacy: Join the grassroots effort to impact legislative and regulatory issues more>

New Consensus Document: An Approach to the Diagnosis and Treatment of HAE more>

HAE Essentials: A video series with a wealth of HAE information more>