Welcome to the U.S. Hereditary Angioedema Association's website. We are a non-profit patient advocacy organization dedicated to expediting US approval of safer and more effective HAE therapies. In addition, we provide a wide range of services that include clinical trial placement, physician referrals, education, and individualized patient case management. Please click here and fill out a short form so we can provide you with the latest information regarding new HAE treatments and events sponsored by the HAE Association.
HAE Patient Identification Card,
 HAE Overview HAE Symptoms HAE Attack Triggers HAE Pathophysiology Diagnosing HAE Comprehensive Angioedema Typology and Description HAE Treatments HAE Clinical Trials Offer Hope for Better Therapies 
Changing Paradigms in Hereditary Angioedema: A Focus on Prompt Diagnosis and New Therapies more... New Directions in Angioedema more...   |
 Seven Waterfront Plaza 500 Ala Moana Blvd., Suite 400 Honolulu, HI 96813 Toll Free Business Phone: (866) 798-5598 Fax: (508) 437-0303 For urgent assistance, please call: Donna Davis (808) 216-1029 or Michelle Williamson (972) 814-5205 
Cinryze, ViroPharma's C1-Inh product, is FDA approved and can be prescribed to prevent HAE attacksPlease contact the HAEA's Patient Services group for more information. Read the highlights of the 2008 National Patient Conference Clinical Trials Bring much-needed HAE treatment to the US. Sign up to participate in the clinical trials Register to be a member of our message forum and be a part of the HAEA online community. HAE Guide Everything you need to know about HAE diagnosis and treatment Angioedema Table Find out the difference between the different types of Angioedema New Treatment Options Learn about the ongoing clinical trials which will revolutionize the way HAE attacks are treated. Physician Referral Find a physician near you. HAE Patient Email Support Group Reach out to other HAE patients by subscribing to our message forum Be part of our Volunteer Network! Join our network of HAE patients who are motivated to help serve our patient community. |
 June 4, 2009 - Read abstracts of HAEA-sponsored research presented May 21-23 in Budapest, Hungary at the 2009 C1 Inhibitor Deficiency Workshop  HAEA.org wins the 2009 AAAAI Distinguished Layperson Award....more
April 2009 Read our SPRING 2009 NEWSLETTER.March 2009 Watch news coverage on how Cinryze is transforming an HAE patient's life. Dec. 1 - Discovery Health channel will devote an episode of their program MYSTERY DIAGNOSIS to the story of one of our patients, Janet Long. ...more May 2, 2008 The latest on C1-Inh approval in the US Jun 08, 2009 - Dyax Announces FDA Accepts for Review the Complete Response Submission for DX-88 in Hereditary Angioedema Jun 04, 2009 - VIROPHARMA RECEIVES COMPLETE RESPONSE LETTER FOR CINRYZE™ SUPPLEMENTAL BIOLOGICS LICENSE APPLICATION FOR ACUTE TREATMENT OF HERE Mar 26, 2009 - Dyax Says FDA Seek More Details On DX-88 Mar 15, 2009 - Rapid Treatment of Hereditary Angioedema Attacks at the Onset of Prodromal Symptoms Decreases Morbidity and Mortality Feb 04, 2009 - FDA Advisory Committee Favors Approval of DX-88 for Acute Attacks of Hereditary Angioedema Feb 03, 2009 - FDA cites allergic reactions with Dyax drug eBay users, here's a new way to give!  Buy or sell on eBay and support HAEA.com. |